Long Days

Posted bycindyatkinson0516Posted inUncategorized

Sometimes I just wish I could fast forward to the end of a day. This is definitely one of those days. The 7 of us are driving to Cincinnati so that Caleb can get a scope of his esophagus. His gastroenterologist is trying to figure out what in the world is going on. Caleb’s reflux is currently out of control. And it shouldn’t be. He is medicated. We cut his food up tiny. He eats dinner at 4:30 so that his food has plenty of time to digest before bed. We divide each meal into fourths and set timers so that it takes him 20 minutes to eat. He sleeps on an incline. It’s a lot. And it’s not working.

We waited until this morning to tell Caleb. It feels a little mean. And yet necessary. Otherwise he would not have slept a wink last night. He got up this morning ready for his glass of strawberry milk. Nope. Not only that, he can’t eat anything until after the scope which doesn’t even start until 3:45 pm. Guys, it’s gonna be a long day. And it’s exactly what the Lord has for us.

Please pray for sweet Caleb. Pray that he will be calm and when he is not, that he will be consolable. Please pray for answers. The expectation is that his esophagus is closing due to scar tissue from the reflux. That happened almost exactly 2 years ago. And honestly, we hope that’s what they find. It is fixable and the alternative is square 1. That’s my least favorite square. 😉

Please pray for patience for all of us, especially Alexa. This will be the hardest on her. She loves Caleb so much and feels for him so deeply. Also, she is the greatest comfort to him and she takes that responsibility very seriously.

9 thoughts on “Long Days”

  2. Cindy, I just read your email and want you to know that I am praying for you and your whole family today. It’s hard to deal with physical symptoms in the best of situations, and when the child has difficulty understanding the reasons for what’s happening, it is so much harder. I pray for a peaceful and encouraging day for you and that the answers will not be too hard to deal with. Sending love and encouragement from Tulsa!!

    Marilyn Mason (Jill’s mom)

    Like

    Reply

  3. First of all, thank you, Lord Jesus for surrounding Caleb with the absolute most perfect family for him! I Lord, I pray that this journey together will not only bring solutions and answers to Caleb‘s reflux issues, but will be a time of growth for these seven precious souls. Lord, thank you for giving us the avenue of prayer and friendship in order to encourage each other and to build each other up in faith. Lord give Alexa an extra measure of exactly what she needs to be Caleb‘s comforter. In the name of Jesus, amen.

    Cindy, thank you for sharing this journey and your heart with us. I love you bunches!

    Like

    Reply

  5. I am praying for you all. I was listening to a podcast this morning and one of the verses that was talked about was Romans 12:10 “Love one another with brotherly affection. Outdo one another in showing honor.” This verse made me think about all you have written about Caleb and how much he lives out this truth! I am praying that God will be bring unexpected blessings your way today, both big and small, and that he will comfort you and give you a steadfast, unshakable hope that will be obvious to all whom you come in contact with. May someone today come to know more about Jesus Christ because they see him in you and hear of him from you all. 

    Like

    Reply

  7. Ed. & I are Praying for specific requests. Prayers for safety, traveling, prayers for Caleb to be calm and for the surgery to go well. Praying for sweet Alexia sweet little heart toward her brother. Praying
    for a wonderful visit at the horse park. We love y’all

    Like

    Reply

Leave a reply to psalm139sixteen Cancel reply