Long Days #3 (9 pm)

Wow. What a day. I think we have lived weeks in the last 15 hours. But the good Lord was with us. As always. And he sustained us. As always.

Caleb was amazing. He loved having all of his siblings with him. And everyone who met him loved it for him. Again and again people were so touched by the whole situation. And all the love.

Cincinnati Children’s is amazing. They continue to find the pieces of the Caleb puzzle and put the picture together. Piece by piece. In the Lord’s timing.

Today another piece was found. The scope was definitely the right call. Caleb’s esophagus is a hot mess. It is scarred and damaged and even has an ulcer. All of that is likely indicative of a condition called Eosinophilic Esophogitis. That was not the news we expected but it is good news. Because it is treatable.

Caleb made it. We didn’t fast forward. We endured. And we are stronger for it. Thank you for praying our family through a long day.