Road to Answers #6 (December 14, 9:45 pm)

Today was rough. It was exactly what the Lord had for us and He sustained us. As always.

I knew that it would be hard. I knew we would be tired. In all the ways. I knew that we would be so ready to go home. And I knew about the blood draws.

We had a 10 am appointment with Dr. Nat of Endocrinology. Oh man. What a blessing. Another educating doctor. He explained that issues in the Endocrine system can cause high blood pressure, which Caleb has. So far, no other doctor has found the cause. So, enter Dr. Nat. He is going to investigate Caleb’s thyroid and adrenal glands. And he is also waiting for answers from genetics. He is confident that if we all work together, we can put the Caleb puzzle together.

And then it was time for the blood draw. We went in the hallway to devise a plan. I explained how bad it would be. About how hysterical Caleb would get. I asked the team to not give up. To get it done.

I have 5 kids. None of them like having blood taken. But with Caleb, it is next level. He absolutely loses his mind. He has to be restrained. And he fights hard. The whole time. When he was a baby, I could restrain him by myself. Those days are long gone. Today, it took 4 of us. But we got it done. And I am so thrilled. I don’t take that for granted for one second. Many people have thrown their hands up over the years. Words cannot express how hopeless that feels. But today, we had a group of people that chose to come alongside and stay to the finish. I think we all felt like we had run a marathon when it was finally over.

Our 1 pm Ophthalmology appointment was canceled. The doctor was sick. I cannot tell you what a blessing that was. I cannot imagine trying to do that appointment after our morning. God knew. He is truly in the details.

Instead, Marmee, Caleb and I got lunch and hit the road. We were home by 6. We are so tired, so thankful and so feeling God’s provision.

Thank you all so much for praying us through this Cincinnati visit. I will keep you posted. It will likely take 6 months to get results. Please pray for clear answers. Please pray for endurance for all of us. Please pray that God is glorified in it all.