Road to Answers #5 (December 13, 10:45 pm)

Phew. What a long day. And a sweet one.

We began our day with Orthopedics. There were questions and exams and X-rays. And then more questions. Dr. McCarthy was so kind and encouraging and SO full of energy. He thought Caleb was the sweetest. He said he looks great. The bi-lateral foot reconstruction he had at age 6 is holding strong. He has very mild Scoliosis that does not need treatment. We will go back yearly just to make sure everything looks good. Every single person in that office was so kind and so good at their job. Our X-ray tech was especially efficient. Caleb normally panics, but she was so calm and so quick and so accommodating. There simply was nothing to fuss about. We were out of there in time to go to the cafeteria for a snack, some hangman and a few silly photos.

Then on to Urology, Dr. DeFoor. He and his staff were also amazing. After a thorough exam he decided that we can see him only on an “as needed” basis. Yes please! We were done sooner than anticipated so we got to come back to our cozy apartment for lunch and a little rest.

Finally, gastroenterology. That was the big dog of the day. I had so many concerns to talk to Dr. Farrell about. And he listened to every one. With such love. He cared very much about my ideas and insights regarding Caleb. You could actually see him trying to put all the pieces together and come up with the best plan for Caleb. And it’s just going to have to be a process. He believes that the answers he needs will come from genetics and that could take months. So, for now, we are changing and adding some medications to give Caleb the best quality of life possible. He wants to see Caleb back in 2-3 months. We all felt so loved and encouraged when we left. Spoiler alert- I will absolutely have cake pops in hand upon our return.

Tonight, we went to the YMCA. Caleb got to swim. I got to run. Marmee got to watch Caleb swim and sew. It was so lovely. A perfect end to a perfect day. God is so good. He goes before us. He is with us. We are so thankful.

Please pray for tomorrow. There will likely be bloodwork which is usually quite the ordeal for Caleb. Please pray for more people that love him. Please pray that he is calm. Please pray for answers.