Category Archives: Uncategorized

Extra. It has 3 definitions. 1- “added to an existing or usual amount or number; additional”; 2- “excessive or extravagant”; 3- “doing the absolute most”. Our Caleb is definitely extra. In all the ways. We met with the genetic counselor from Cincinnati. Genetically, Caleb is extra. Specifically, he has a 1p36.11 duplication. It is soContinue reading “Road to Answers #8 (March 22, 1:30 pm)”

Micro Array. Have you ever heard of it? It’s a test. Maybe the most detailed test that can be done on a person. It looks at DNA. Well, technically it looks inside the DNA. For mutations and deletions and duplications of chromosomes. Back in December, Dr. Bulonis (our geneticist in Cincinnati) requested the Micro ArrayContinue reading “Road to Answers #7 (March 13, 8pm)”

I have faith. I have a lot of faith actually. I have faith that God is who He says He is. I have faith that He will do what He says He will do. He always keeps His promises. I have faith that He does more than we can ever ask or imagine. I haveContinue reading “Be Still”

Life has hard seasons. There is no denying it. Some seasons are so hard that they almost feel unbearable. But whatever God has for us is never unbearable. His Word promises that. Last summer, my mama heart was breaking. And it was relentless. For weeks. On June 2 I was driving to the hospital alone.Continue reading “It Is Well”

Oh my. I truly do not have words. My heart is absolutely overflowing with thankfulness. I am so thankful to our God and Father. Who sent His one and only son to earth. To live a perfect life. To die on the cross for our sins. To rise on the third day. I am soContinue reading “Merry Christmas 2022!!!”

Today was rough. It was exactly what the Lord had for us and He sustained us. As always. I knew that it would be hard. I knew we would be tired. In all the ways. I knew that we would be so ready to go home. And I knew about the blood draws. We hadContinue reading “Road to Answers #6 (December 14, 9:45 pm)”

It’s over. They got what they needed. Thank you for praying.

Please pray. Very upset and scared about blood draw.

Phew. What a long day. And a sweet one. We began our day with Orthopedics. There were questions and exams and X-rays. And then more questions. Dr. McCarthy was so kind and encouraging and SO full of energy. He thought Caleb was the sweetest. He said he looks great. The bi-lateral foot reconstruction he hadContinue reading “Road to Answers #5 (December 13, 10:45 pm)”

Well friends, God’s perfect provision carried us for the rest of the day. After our visit to the geneticist, we came back to our sweet little boho apartment (with lots of yellow and natural light… my favs). We made orange chicken and spring rolls (thank you Aldi!) in our cozy little kitchen. We ate andContinue reading “Road to Answers #4 (December 12, 10:55 pm)”